Project partners

no clients, no providers…just partners

Associazione Veneta per la Lotta

alla Talassemia

Associazione Veneta per la Lotta alla Talassemia (A.V.L.T.) is an ONLUS (non profit-making organization of social value) in accordance with comma 8 of article 10 of Government Decree no. 460 dated 4th December 1997.

The Association is involved in:

  • taking care of thalassaemics in health service structures
  • providing families with information about the disease and the treatments, by means of meetings and personal appointments with specialists
  • participating in meetings with various institutions and associations in order to spread awareness of the disease and how to prevent it.



Neupharma is a young and modern company focused on innovation aiming at rare diseases, particularly cystic fibrosis. Neupharma is market leader in Italy for the inhaled treatment of chronic Pseudomonas aeruginosa lung infections.

Neupharma distributes in Italy  the most advanced medical devices for the inhalation therapy in cooperation with the world leader Pari GmbH.



The “WithUsShare: Mario Zanobini Usher Syndrome Foundation” was born in 2015 by the will of Alessandro Mennella’s family. Alessandro is the grandson of MarioZanobini and also the testimonial of the RarePartners’ program named Run4Usher.

The Foundation’s mission is to foster biomedical research, raise awareness and gather together as many people and organizations as possible, sharing the same goal to fight against Usher Syndrome.