Major players

small business… big therapeutic problems to solve

Rare Partners is open to collaborations with all major players involved in the rare disease field, taking advantage from its non profit nature, which facilitates win-win agreements driven exclusively by the interest of the patients suffering from a rare pathological condition.

Here below you find a non-exhaustive list of websites of institutions, organizations and networks dealing with rare diseases and orphan drugs.

European Organisation for Rare Diseases (EURORDIS)


Genetic Alliance

Genetic and Rare Diseases Information Center (GARD)


Kakkis EveryLife Foundation

National Organization for Rare Disorders (NORD)

National Center for Rare Diseases

Office of Orphan Products Development (OOPD)

Office of Rare Disease Research (ORDR)


Rare Disease Communities

Rare Disease Foundation